Complete Home Toolkit - for parents of children with anxiety

http://www.anxietybc.com/parent/complete_home_tool_kit.php

Managing eating issues in children with Asperger Syndrome:

Researchers at UQ have developed a set of food and nutrition resources that aim to provide strategies for managing selective eating in children with Asperger’s Syndrome. You’ll find hypothetical case studies developed from discussions with parents of children with Asperger’s, activity sheets, and a comprehensive selection of supporting materials.

http://www.autismqld.com.au/userfiles/Appendix%206_4%20Booklet.pdf

10 things you can do to support a person with difficult behaviours

really like this approach.

Supporting a person with difficult behaviors begins when we make a commitment to know the person. Sadly,  it is often the case that the people who develop an intervention to stop someone from engaging in difficult behaviors do not know the individual in any meaningful sense.  Instead, they see the person as a someone (or something) that needs to be fixed, or modified.  But attacking a person’s behavior is usually ineffective and always disrespectful.

http://www.dimagine.com/10things.pdf

Book GP appointments 24/7

http://healthengine.com.au/

find GP's in your local area and book appointments online.

Disabled couple thrilled they’ll be able to keep their baby

WONDERFUL news for this couple!!!
but..... WHY did they have to prove they were fit to care for their baby? and why was it assumed they couldn't because of their disabilities????

http://www.thestar.com/news/article/1173602--disabled-couple-thrilled-they-ll-be-able-to-keep-their-baby

The proud parents of a 3-week-old baby boy learned Friday that they won’t lose their child to the Peel Children’s Aid Society after all.
“Yay!” Maricyl Palisoc, 34, yelled as she carried 9-pound William into her assisted living apartment unit in Mississauga with her fiancé, Charlie Wilton, 28. Both parents have cerebral palsy.
They had feared they would lose the baby, but a family conference meeting was held Friday with Peel CAS and the parents showed that they can address the safety and well-being of their child.
They have a personal care worker with them 24 hours a day and grandparents willing to help.
It’s been an emotional three weeks after their son was born by C-section at Mount Sinai Hospital.

Autism Links

Movie by a mum who used to live in the ACT, now in the UK
http://animoto.com/play/oDoI4k7VGykvq95pkD7R1g

Paper: The Intense World Syndrome – an Alternative Hypothesis for Autism
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2518049/

Autism rate is up on campus, in U.S.
http://www.mndaily.com/2012/04/26/autism-rate-campus-us

Non-speaking, low functioning (how things are not always what they seem)
http://www.shiftjournal.com/2012/01/11/non-speaking-low-functioning/

NDIS updates

a couple of days out of date, but i have been out of action at the DANA conference which was held here in canberra.

at least i got to join in on the only "make it real" rally in canberra (and the group was MUCH bigger than it appears in this photo!)
http://www.canberratimes.com.au/act-news/rallies-herald-the-introduction-of-disability-scheme-20120430-1xvga.html

and i'm way too slow to send this out, but will share anyway
https://essentialmedia.createsend.com/t/ViewEmail/r/2A99D0BE482DFD74/C67FD2F38AC4859C/text/

NDIS to launch in 2013
http://www.pm.gov.au/press-office/national-disability-insurance-scheme-launch-2013

Launching the NDIS, Sydney (Julia gillard's speech)
http://www.pm.gov.au/press-office/launching-ndis-sydney

autism links

apologies for not many posts lately : over the past month we have nad a holiday in fiji, got stuck there due to floods, then all got sick over there (and i got much worse when we got home) and now i have sciatica and can't sit for very long so am not finding or posting many links. add to that the fact that my kids have taken over my computer while i'm not on it so much and lost all the links i was saving and i'm lucky to have managed to re-find this many! (apologies there aren't any non-ASD ones, i tend to find them more at work and have had to have time off due to my health :()

anyway, enough of my whining, on with the links!

Autism science is moving 'stunningly fast'
http://www.usatoday.com/news/health/story/2012-04-08/Autism-science-research-moving-faster/54134028/1

NOT JUST ASD!!!
Breaking the rules: feeding aversions
http://handyhandouts.com/pdf/143_Breaking%20the%20Rules%20Feeding%20Aversion.pdf

Autistic child defended in cafe : what would you do?
http://abcnews.go.com/WhatWouldYouDo/video/autistic-child-defended-cafe-family-at-dinner-man-criticizes-wwyd-16136829
i found this one interesting viewing - it was good to see how many people spoke up / acted. however in our situation my son does not have any obvious signs of his asperger syndrome, unless you were an expert who could pick up every nuance. i bet we wouldn't get the same support these people did...

BEAUTIFUL STORY - please read :)
Autism is Remarkable When You Take the Time to Understand It
http://greenbelt.patch.com/articles/autism-is-remarkable-when-you-take-the-time-to-understand-it-9ee3a5cb

Weekend Autism links

High child autism rates among obese women
http://www.news.com.au/breaking-news/high-child-autism-rates-among-obese-women/story-e6frfku0-1226322925697

Dear researchers: please stop
http://www.stuartduncan.name/autism/dear-researchers-please-stop/
(kind of ironic given the link above!)

CDC report: ASD - original info
http://www.cdc.gov/ncbddd/autism/data.html

Amazing new device that may replace wheelchairs for some

http://www.wimp.com/newdevice/

Disability Housing Projects here in the ACT

Getting a life

http://gettingalife.com.au/index.php?section=1

Getting a Life is a family-governed group which is committed to building a strong community for Jackson, Daniel and Ben and for the other residents. We can call this an intentional community of attachment, an inclusive community, a neighbourly community or a friendly warm and inviting community where people care about, greet and help one another.

ACT Community Living Project

https://communitylivingproject.org.au/

The ACT Community Living Project Inc (CLP) is a not-for-profit community organisation seeking services for people with disability, particularly those with a moderate to severe intellectual disability, many of whom have physical and/or health challenges.

This group also includes people with Autism.

CLP represents over 350 families in Canberra and the surrounding region who are seeking quality life choices for a family member with an intellectual disability. CLP also represents families from interstate.

Over 94% of the group CLP represents still live at home, many with ageing parents. Families are deeply concerned about what will happen to their much loved family member when they are no longer able to be cared for in their family home.

Easter Weekend Autism Links

Letter to grandparents of children with asperger syndrome
http://asdrendrewolf.org/apovonautism/letter.php

Autism: another example of how being poor is bad for you
http://www.boston.com/lifestyle/health/mdmama/2012/04/autism_another_example_of_how_being_poor_is_bad_for_you.html

CDC states autism affects 1 in 88 people
http://theautismsite.greatergood.com/clickToGive/aut/article/CDC-states-autism-impacts-1-in-88-children845?origin=AUT_FACE_AWARE_ADGROUP_GGOBLOG_CDCarticle_4-6_CTG


13 Secrets Parents Need to Know About Autism but Haven't Heard Yet
http://www.wrongplanet.net/article358.html

50 things you should not say to autism parents
http://www.autism-island.com/2012/03/50-things-you-should-not-say-to-autism.html?m=1

 Beautifully Quirky Blog: Autism Awareness: What One “ASD Mamma” Wants You To Know
http://beautifullyquirky.wordpress.com/2012/04/01/autism-awareness-what-one-asd-mamma-wants-you-to-know-2/

Thinking Smarter About People Who Think Differently
http://www.wired.com/wiredscience/frontal-cortex/

A couple of Autism links

Moms of autistic children work less, earn less

http://www.chicagotribune.com/health/sns-rt-us-autisticbre82i058-20120318,0,5306089.story


‘Idol’ star, on greatest living rock stars list, performs locally

http://www.pbpulse.com/music/2012/03/22/idol-star-on-greatest-living-rock-stars-list-performs-locally/


Ariz. researchers battle autism before it begins

http://ktar.com/6/1517307/Ariz-researchers-battle-autism-before-it-begins

Literacy instruction for children with disabilities

What is the purpose of this website?

This website provides guidelines for teaching literacy skills to learners with special needs, especially learners with complex communication needs (CCN) such as:

• Autism spectrum disorders
• Cerebral palsy
• Down syndrome
• Developmental apraxia
• Multiple disabilities

This website provides information on:

• What skills to teach
• How to teach these skills
• Videotaped examples of instruction with learners with special needs

http://aacliteracy.psu.edu/

Air Travel for people with autism

I currently have one nearly 9yo who is getting very anxious over flying out of australia in our near future. Looking for resources and thought I definitely need to share! (especially as there seems to be little else to share lately, funny how there are slow times and busy times with the activities available for PWD in the ACT)

Autistic Globetrotting
http://www.autisticglobetrotting.com/

Travelling through the airport - Dublin Airport
http://www.dublinairport.com/gns/at-the-airport/autism-asd.aspx

Airport awareness - Manchester Airport
http://www.manchesterairport.co.uk/manweb.nsf/alldocs/4D4CC20F97DD74008025736400407C2E/$File/Airport+Awareness+book.pdf

"Autism Explores" program at Newark Airport
http://www.nj.com/news/index.ssf/2011/02/nj_autistic_children_brave_con.html

Airports, Airplanes & Autism (from Florida)
http://www.umcard.org/files/CARD_AwarenessBrochures_Airport.pdf
I really like this one to print out to take with you to help explain your child's autism

a whole list of links and resources, though now 5 years old
http://www.autism-pdd.net/forum/forum_posts.asp?TID=19426&KW=airplane+travel+resources

and one mother's experience: Airlines and Autism
http://www.huffingtonpost.com/elaine-hall/airlines-and-autism_b_933179.html?iframe=true&width=100%&height=100%

wow, the sydney airport info is pretty woeful for people with an ASD...
http://www.sydneyairport.com.au/prepare/quick-links/special-assistance.aspx

and some Australian resources....


Holidays: Preparation and Practicalities for Families with an Individual with an ASD
http://www.amaze.org.au/uploads/2011/08/Fact-Sheet-Holidays-Preparation-and-Practicalities-Aug-2011.pdf

 tips for travel
http://autismcommunity.weebly.com/long-travel-with-asd-child.html

Autism Links on the Canberra Day Long Weekend :D

New Study Shows Minority Toddlers with Autism are More Delayed than Affected Caucasian Peers

http://www.kennedykrieger.org/overview/news/new-study-shows-minority-toddlers-autism-are-more-delayed-affected-caucasian-peers



Why people with Aspergers seem so awkward around others: Rudy Simone

http://www.autismsupportnetwork.com/news/why-people-autism-aspergers-seem-so-awkward-around-others-33892322


hmmmmm that's not many! i will try to find a few more before the end of tomorrow ;)

Disability Rights Blog: A project by the Australian Human Rights Commission

what a great idea!!

http://www.ahrcblog.com/

Aspergers & Autism Links

Kathy Lette : My Son has Aspergers
http://aww.ninemsn.com.au/news/inthemag/8422678/kathy-lette-my-son-has-aspergers

Aspergers and Genetics
http://www.myaspergerschild.com/2010/06/aspergers-and-genetics.html


Differences in White Matter Fiber Tract Development Present From 6 to 24 Months in Infants With Autism
http://neuro.psychiatryonline.org/data/Journals/AJP/PAP/appi.ajp.2011.11091447.pdf


The autism epidemic and the battle for parents struggling to get help for their kids
http://www.centreblog.com.au/2012/02/25/the-autism-epidemic-and-the-battle-for-parents-struggling-to-get-help-for-their-kids/

My Obsessive Son: Just Like His Dad & Grandpa
http://www.opposingviews.com/i/health/conditions/my-obsessive-son-just-his-dad-grandpa

The latest TV Trend: Autism / and movies too!

I know plenty about people on the autism spectrum. Communication and social skills present them with considerable challenges. They attach great importance to predictability and routine. They have highly specific tastes and preferences and become intractable when these are not met. They have difficulty understanding and processing human emotion, including their own. All of them are male, and all but one of them are young. And they have the ability to perform superhuman feats of memory and mathematics. I know all this, of course, only from popular culture. So maybe I don’t know as much as I think I do.

http://ideas.time.com/2012/02/17/the-latest-tv-trend-autism/

and the latest movie - Extremely Loud and Incredibly Close
http://www.imdb.com/title/tt0477302/ hoping to see this one soon :)

Healthrites bookshop

Has a great collection of books related to disability (generally), sexuality, relationships etc

http://www.fpnsw.org/categories/Bookshop/

http://www.fpnsw.org/categories/Bookshop/Disability/

I’ve used many of the disability & sexuality books in my work previously and can highly recommend them